Empathy revisited

I find I don’t post as often when I’m not feeling good about things.  I try to be positive most of the time, although I do post an occasional rant, but when I can’t find the bright side or something to laugh about, it gets harder to write. 

We had friends up for the weekend recently who have a daughter G’s age and a daughter that just turned 1.  The one year old is walking and exploring her environment which means she routinely breaks many of G’s rules.  We worked a babysitting swap so each set of parents could get out to ski.  Before we left, I had to run down the things they should watch for with G, including not letting the baby and G be together and unattended at any time because if the baby broke a rule I didn’t trust him not to retaliate by hitting or shoving.  It made me sad.  I felt like I was warning people to protect their children from my own son.  G’s also had a difficult month at school, as illness is a major behavior trigger and he was so sick in January.  We’ve been meeting with his team for a new round of behavior plans and positive interventions.    It has been difficult to find the positive to blog about.

Tonight at dinner, we were chatting about G’s day at school and were discussing a program the school runs where they gather certain kids together first thing in the morning and do a bunch of gross motor exercises.  It helps get the fidgets out and calms the students for the rest of their day and G loves to tell us about the fun activities they do.  We love that he can recall this time during his day and try to work it for all it’s worth!  We asked G if any of his friends go with him and he listed a couple names.  Then he says that ‘P’ goes too.  P is another kindergartener that is autistic and I’ve chatted with his mom a time or two.  I asked G if P was a nice boy and a friend of his.  G replied, ‘he’s kind of nice, but he screams a lot and I don’t like that.’  (please note that another of G’s sensory triggers is sudden, loud noises to the extent that he has been known to run from public bathrooms in a total panic if the toilets flush too loudly) 

Dh and I were both silent for a moment as we struggled to explain.   This is what we came up with:  ’G, you know how when we’re in a crowded place or when we’re somewhere that is too noisy you feel anxious and upset?  And sometimes you react by screaming and hitting?  Well, P feels like that too and deals with those feelings by screaming the same way you do.  P is doing the best he can to cope with a tricky situation the same way you do your best when you feel overwhelmed.  P is a very nice boy and it would be great if we could be more understanding when he needs to scream.’   G silently ate his dinner for the next few minutes in that way he does when he is processing something.  I hope we explained adequately without making too many assumptions about a child we don’t know very well.  Mostly, we spoke from the heart in the way I would want other parents to speak to their children about G.

Published in:  on February 25, 2009 at 4:17 am Comments (5)

Thinking Out Loud

We got G’s official IEP in the mail recently.  Overall, I am happy with the goals and interventions.  There are just a couple references to teaching G to sustain eye contact during conversations that I’m less than thrilled with.  Just to be sure,  over dinner I spoke with G about looking in someones eyes and how it makes him feel.  I wanted to have the conversation in front of my husband so he would hear first hand and not think I was making a big deal out of a seemingly small detail.  G again affirmed that looking in peoples eyes makes him feel uncomfortable and he would rather look at someones mouth. 

I plan to mention this at our next IEP meeting in the spring.  But I’m wondering if I should mention it sooner?  It seems like a small detail but the more I think about it, the more I want to be sure they’re not forcing him to stare into people’s eyes if it is uncomfortable, and possibly hurts him.  I’m also wondering how common it is to accommodate this type of thing.  Is eye contact a necessary social skill for later life?  Is teaching him to look at a person’s mouth sufficient? 

The more I think about it the more confident I feel that having G turn and watch someone’s mouth is enough to let a speaker know G is paying attention.  People would know he isn’t looking them in the eye, but it would be close enough to acceptable to be a quirk rather than an impediment, I think.  I have trouble making eye contact myself – I look at noses and ears, particularly when I’m feeling insecure and no one has ever mentioned anything to me.

I think I’ll mention this to G’s teacher the next time I’m speaking with her, and then I’ll bring it up formally at the next regular IEP meeting.

Published in:  on February 9, 2009 at 4:11 am Comments (4)

Sick Season

G was sick with a fever and upset stomach this weekend so I kept him home from school on Monday.  Yesterday (tuesday) he was fine so I took him to school.  On the drive in, he sneezed twice.  By lunchtime he was sent home with a cold bad enough to keep him from functioning well at school.  (his behavior was fine, but he was extremely lethargic)  He’s home from school today and probably tomorrow – and now I’m feeling distinctly crappy. 

So that’s what we’re up to lately.  Good times.

Published in:  on February 5, 2009 at 12:52 am Comments (2)