Moving forward

We’re making progress on the diagnostic path.  We’ve been contacted by the clinical psychologist who will administer the ADI-R, which is the interview given to parents of kids being evaluated for autism.  I’m hoping we can get the appointment set up for this week or next so we can get the ball rolling.  Once the interview is complete then G will have his ADOS evaluation.  The evaluation team will be comprised of a psychologist, an occupational therapist and a speech therapist (I feel like I’m forgetting someone) who haven’t met G before to ensure objectivity.  The autism specialist from the school is facilitating the appointments but is being very careful to prevent bias.  So I am very confident that the result of the evaluation will be correct.

Here’s where my personal crazy comes into play.  I am afraid – but I’m not afraid that G has Aspergers/Autism.  I’ve already gotten through the greiving process that comes from being told something is different about your child.  I’m comfortable with the idea and think it explains a lot about my child.  I’m not desperately looking for someone to tell me this was all a misunderstanding. 

Instead, I’m afraid they’ll tell me he doesn’t have autism.  I’m afraid they’ll tell me he is ‘simply’ smart, energetic, introverted, quirky, just a boy or that he’ll develop emotionally slower because he developed intellectually faster.  All the theories we’ve heard from our well-meaning family and friends.  Then they’ll tell us he doesn’t qualify for services anymore.  They’ll take away all the great things in his iep designed to organize his day and give him breaks when he feels overwhelmed.  We’ll be left to muddle through on our own, we’ll be drug into conference after conference to discuss his social and behavior problems in school without ever having the understanding or resources that could help us all correct them.  And that is just my perspective as a parent.  I don’t even want to go into imagining what school would be like from G’s perspective without these supports.

How do you explain to someone that you want an autism diagnosis, without sounding nuts?

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Published in: on August 9, 2008 at 7:13 pm  Comments (5)  

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5 CommentsLeave a comment

  1. I completely understand that. Completely. I was this way when we went to the OT and were looking at a diagnosis of Sensory Processing Disorder. Now, we have that “diagnosis,” but I still think there’s more to it. SO, like you, I’d be more than happy to find someone to tell me that yes, there is something going on here, and yes, we can help you make life better for your son.

    Don’t feel badly about this. I think you’re totally normal and right to feel the way you do.

  2. My daughter still argues with me about whether my “special” kids should be labelled…and I’m like, bring the label on! It does open an awful lot of doors… keeping my fingers crossed for you!

  3. Thank you both! I’m so glad there are others who understand.

  4. How do you explain to someone that you “want” an autism diagnosis? You tell us, your fellow bloggers, for whom this desire needs no explanation.

    Found your blog through Awalkabouts Weblog and am pleased to meet you.

  5. I’m pleased to meet you too, Mama Mara! Thank you for understanding.


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